“We Need to Talk”: Social and ethical dialogue around genomics and disability

A team of researchers from The University of Queensland has embarked on a collaborative research project – “We Need to Talk” – focused on identifying, understanding, and addressing the issues and implications of genomic technologies for people with disability.

The end goal of the project is to combine the views of people with disabilities and their families with the views of medical and health professionals, policy makers and researchers to create a shared discussion regarding genomic technologies and their implications for people with disability.

Using co-design methodology, the project includes people with disability, other key stakeholders and the research team working collaboratively to identify practical solutions to key issues, and to create resources to support disability-informed and evidence-based clinical practice in genomics.