Survey

The “We Need to Talk” project is currently seeking participants to complete an anonymous survey about genomics technologies and disability.

We are seeking people with a lived experience of disability, parents/carers of people with disability, health and medical professionals, genomics researchers and members of public to complete this survey.

The survey takes between 20 and 30 minutes to complete, and those who complete the survey can enter a raffle to win one of five $100 Coles Myer Gift Cards. Only Australian residents are eligible to participate in this study.

To access the Participant Information Sheet for this survey, please click here.
Please feel free to contact the “We Need to Talk” research team (weneedtotalk@uq.edu.au or 07 3365 6493) if you have any questions about the survey.

Access the online survey:

To complete the online survey, please click here.
If you are a person with lived experience of disability, or the parent/carer of a person with lived experience of disability who needs an accessible version of the survey where you can speak and audio record your answers, please click here.

Want to complete a paper-based survey?

To request a paper copy of the survey, please contact the “We Need to Talk” research team (weneedtotalk@uq.edu.au or 07 3365 6493).

How long will the survey be available to complete?

The survey will be available to complete online until April 30, 2023. All paper surveys need to be returned by this date also.

Interviews for people with a lived experience of intellectual or cognitive disability

Please click here for information in Easy Read

If you have an intellectual and cognitive disability and would like to be participate in an interview to express your views on genomic technologies, please contact the “We Need to Talk” research team (weneedtotalk@uq.edu.au or 07 3365 6493).

To access the Easy Read Participant Information Sheet for this interview, please click here.